NHF12-003

Von Willebrand Disease

Speakers: Cynthia Gauger, MD

Learn about coping with the diagnosis of VWD, management of the disorder and specific challenges it presents during childhood. Includes a brief overview of medication and other therapies for treatment and prevention of bleeding episodes. Learn what to expect during the progression of VWD from infancy through adulthood, the benefits of a team approach to treating physical and psychological aspects, and the services that are available at a hemophilia treatment center (HTC).

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

Audio CDs: 1

Audio CD

$12.00

$12.00

ABA15-123

Ethics of E-Discovery in Complex Litigation

Audio CD

$18.00

$18.00

NHF12-110

Head, Shoulders, Knees & Toes: Pros and Cons of Protective Devices

Speakers: Kristen Jaworski, RN, BSN, CCRC

In this session, we discuss safety equipment for daily activities for children with bleeding disorders and the ability of safety measures to ultimately prevent bleeding episodes. We focus on the pros and cons of protective equipment and how to make the best decisions for your family using MedicAlert® guidelines. How important is MedicAlert identification? What is the best safety plan for your child? Can bleeds be prevented? Listen and find out!

Audio CDs: 1

Audio CD

$12.00

$12.00

ABA15-323

Ethically “Blawging” your Way to Success

Audio CD

$18.00

$18.00

IOPEN-000

Audio Book: I Open My Heart, A Soul Journey Through Healing

Join Geanie on a journey from the despair of cancer diagnosis to hope and healing. "I shouldn't be here. I was diagnosed with Non-Hodgkins Lymphoma, cancer of the lymph nodes over 4 years ago." This book provides immediate access to powerful tools and gives practical ways to turn illness around. This is a first hand account, able to bring genuine insight... a survivor's story. Available on CD in Mp3 format, or as digital download.

Audio CDs: 1

Audio CD

$15.00

$15.00

Subtotal

$87.00