NHF12-214

Art or Science: Musculoskeletal Management of Hemophilia for Physical Therapists

Speakers: Alice Anderson, PT, DPT, PCS; Moderator: Eileen San Juan, MS, PT

Art or Science: You are the PT. You know anatomy and kinesiology. You know the basic pathophysiology of hemophilia. But what recommendations will you provide for the person with a bleeding disorder who is sitting in front of you? RICE? Don’t participate in collision sports? This session focuses on what we know, what we think we know, and what we hope we know about an evidence-based approach to the musculoskeletal management of persons with bleeding disorders.

Audio CDs: 1

Audio CD

$12.00

$12.00

ABA15-107

Railroads vs. Airlines: One Statue But Two Different Approaches

Audio CD

$18.00

$18.00

NHF12-121

Insurance and Advocacy

Speakers: Johanna Gray, MPA; Ellen Riker; Michelle Rice

NHF’s DC consultants provide an update on the political climate post election, its potential impact on health reform implementation and what it means to you as a consumer. Learn how to use the Personal Health Insurance Toolkit to assist you in evaluating your health plan options.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-102

I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System

Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH

Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-215

When a Band-Aid and a Hug Are Not Enough! Pain Management and Alternative Therapies

Speakers: Angela Lambing, MSN, NP-C

This session reviews hemophilia pain and how it may be perceived. We look at data from the National Pain Study and discuss non-pharmacological approaches to pain management with an emphasis on collaborating with your hemophilia treatment center for optimal pain management options. We learn to recognize the many different types of hemophilia pain and understand how different non-pharmacological strategies can assist in pain management. In addition, we identify how teens may differ in their expression of pain.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-120

Effective Social Work Strategies for Engaging the African-American Male

Speakers: Waldo E. Johnson Jr., PhD, MSW; Moderator: Debra Honig, MSW, LCSW

This session focuses on the role and importance of historical and contemporary social statuses that shape medical and public health professional individual and institutional practices with African-American males. We explore how these racialized and social class experiences, coupled with American male cultural notions and experiences with public and private social welfare and social service institutions as both patients and clients, frame the context for examining African-American male marginalized engagement and their subsequent distrust/mistrust of the medical and public health professions. In addition, the presentation focuses on how male help-seeking behavior and culture within the disproportionately impoverished African-American community influence engagement with social welfare and social service institutions.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-217

What Do You Want to Be When You Grow Up? College and Career Choices

Speakers: Don Molter, MEd.

Do you want to be a doctor, lawyer, artist or professional athlete when you grow up? Let us tell you how. Hear a discussion on planning for your future, resources that are available, and how to advocate for yourself and take personal responsibility. We focus on scholarship opportunities and grants, the importance of career and personal inventories, the importance of class selection and performance, and hear success stories from our panelists. Learn how to use Internet and college search engines, the importance of the Free Application for Federal Student Aid (FAFSA) and the role that vocational rehab can play.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-003

Von Willebrand Disease

Speakers: Cynthia Gauger, MD

Learn about coping with the diagnosis of VWD, management of the disorder and specific challenges it presents during childhood. Includes a brief overview of medication and other therapies for treatment and prevention of bleeding episodes. Learn what to expect during the progression of VWD from infancy through adulthood, the benefits of a team approach to treating physical and psychological aspects, and the services that are available at a hemophilia treatment center (HTC).

Audio CDs: 1

Audio CD

$12.00

$12.00

Subtotal

$126.00