NHF12-219

Creative SW Programming

Speakers: Peg Geary, MA, MBA, MPH, LCSW, CCM; Elissa Kraus, MS, CGC; Don Molter, MEd; David Rushlow, LMSW; Moderators: Peg Geary, MA, MBA, MPH, LCSW, CCM

Understanding Hemophilia Genetics: How Can We Help? Social Workers are given an introduction to basic hemophilia genetics, including pattern of inheritance, risk determination, and molecular testing and analysis. Using case scenarios we discuss the implications of DNA testing on the patient and family, and the complex ethical issues surrounding the disclosure of results. We explore the psychosocial dynamics of the burden and consequences of genetic knowledge. Participants identify and explore ways to assist patients and families cope with the all-too-common reactions of guilt, shame and blame —— Career Counseling for Adolescence: During this session we focus on the role and importance of career counselors within the bleeding disorder community. We discuss advocacy skills for parents and students, the differences between Healthcare Plans, IEPs and Section 504 plans and when each plan should be appropriately used. Learn about the importance of early career testing, scholarship searches, and school/community involvement activities. —— Utilizing Telemedicine in Rural Communities: This session focuses on implementing a telemedicine program at your HTC. We discuss funding, the protocols and technology necessary to run such a program. Learn how this innovative technology can improve access to healthcare and quality of care for the rural patient population. You also learn how to assess client readiness and delivery of social work intervention techniques using telemedicine as a therapy tool.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-008

Preguntas Para Los Expertos En Español

Speakers: Irmel A. Ayala, MD

Únase a nosotros para esta sesión donde analizaremos la definición médica de hemofilia y la enfermedad de von Willebrand, el manejo de los trastornos y un repaso general de los medicamentos y otras terapias para el tratamiento y la prevención de episodios de sangrado. Habrá tiempo suficiente para preguntas y respuestas.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-007

Liver Disease Interventions and Hepatitis C Updates

This session focuses on stage 4 liver disease (cirrhosis), coordinating liver care with your hemophilia treatment center and the status of new drugs for hepatitis C. We discuss management of complications of cirrhosis, evaluation of orthotopic liver transplantation in a patient with hemophilia and late-breaking hepatitis C therapies. Learn how you can be your own self-advocate when it comes to care, and what is in the pipeline for the future.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-205

I Can Have a Bleeding Disorder and Live a Big Life

Speakers: Diane Standish, LSW; Randall Curtis, MBA; Lilliam Bervis; Eric Burgeson; Danielle Schwager

There are many different perspectives on living with a chronic illness and many reasons to be optimistic. During this session we focus on finding balance in your life, and finding ways to develop your natural skills and abilities. We look at healthy ways to integrate your bleeding disorder with your identity and hear from others who have used their skills in creative, fulfilling ways. Your bleeding disorder is only one part of who you are. Learn how to develop your whole person and tap into your many talents.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-011

It’s a Guy Thing, Too: Men with von Willebrand Disease

Speakers: Sue Geraghty, RN, MBA; Erin Stang, LCSW

Living with von Willebrand disease (VWD) can be very challenging. During this session, we discuss significant quality of life issues faced by men with VWD. We discuss potential challenges that men with VWD face from birth to senior years.

Audio CDs: 1

Audio CD

$12.00

$12.00

NPSG14-207

Resilient Communities: Resources and Case Studies for Smart School Siting

Audio CDs: 1

Audio CD

$15.00

$15.00

NHF12-002

Ethical Social Work Practice: What Every Social Worker Needs to Know

Speakers: Jacob D. Stone, ACSW; Moderator: Nancy Hatcher, MSW, LCSW

This seminar focuses on developing practical ethical problem-solving skills for social workers who treat patients with bleeding disorders and their families. Hear about important components of ethical competence, the use of the NASW Code of Ethics, The Ethical Principles Screen, and how to apply an algorithm for resolving ethical dilemmas. We will also discuss the ways that personal values, agency values and the values of the profession intersect in ethical discernment. Lastly, we examine and discuss several case studies that present ethical dilemmas relating to bleeding disorders.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-202

Steps for Living

Speakers: Ayana Woods, MPH; Chad Feay: Christie VanHorne, M.Ed, MPH

Learn about Steps for Living, NHF’s newest educational program! The Steps for Living website is a great resource for information on bleeding disorders for kids, adolescents, adults and health educators to promote healthy living for the whole family. It’s a practical tool kit to help families deal with the daily challenges of living with a bleeding disorder and make healthy decisions throughout all life stages. Steps for Living is composed of four sections: First Step, ages 0-8; Next Step, ages 9-15; Step Up, ages 16-25; and Step Out - a new section for adults 26 and up.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-010

Ask the Expert: Inhibitors

Speakers: Charles Nakar, MD

Issues covered in this session include inhibitor management, immune tolerance induction therapy and eradication of inhibitors. We discuss the latest research findings on immune tolerance induction therapy, patients using rituximab for high-titer inhibitors, and hemophilia A and B patients with high and low titers. Sponsored by Novo Nordisk

MP3

$10.00

$10.00

NHF12-119

Upper Extremity Orthopedics and Interventions

Speakers: Mauricio Silva, MD

During this session we focus on the evaluation of hemophilic arthropathy of the elbow, including the general signs and symptoms, the physical findings, the evaluation tools and the medical and surgical treatment options. Special emphasis is placed on the evaluation of the available imaging tools (radiographs, ultrasound, CT scan, MRI) and on the available surgical options for advanced hemophilic arthropathy of the elbow. Nonsurgical alternatives are discussed.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-207

Consequences of Blood in the Joint: Science to Clinical Practice

Speakers: Angela Forsyth, PT, DPT

Prevention of joint bleeding to protect structures such as the synovial membrane, cartilage and bone from detrimental changes is optimal, but not entirely feasible at this time. Therefore, we frequently must rely on medical and adjunct treatment administered at the time of bleeding to minimize the negative effects of blood in the joint. Advances in treatment that healthcare providers are able to offer people with hemophilia begin with basic science. In this session we discuss multiple concepts taken from scientific research that may influence future clinical practice and our ability to affect inflammation, wound healing, synovitis, cartilage and bone, and minimizing the negative effects of blood in the joint.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-209

Addressing Therapeutic Gaps in Rare Bleeding Disorders

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-115

Aging & Hemophilia: Embracing Your Inner Geezer

This session focuses on health issues that affect older hemophilia patients and the evolving nature of comprehensive care. We discuss cardiovascular disease; rheumatological diseases such as gout, arthritis and bone disease; cancer screenings; and orthopedic referrals. Learn the symptoms of age-associated health conditions and how you can coordinate with your HTC and other providers to get the resources you need.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-208

The Social Work Intervention in Pain Management

Speakers: Christi Humphrey, LCSW; Moderator: Cathy Hulbert, LCSW

During the session we focus on the role of the social worker in pain management of people with hemophilia. Program participants review research and literature findings on cognitive therapy and mindfulness-based stress reduction (MBSR) and their use as direct interventions with clients in pain. Experience second hand MBSR techniques and tools, and how to expand clinical skill sets for treatment of pain.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-005

Hey, What About Me? Raising Siblings in a Family Affected by Chronic Illness

Speakers: Dave Robinson, PhD

Hear about strategies to create a secure family environment, despite living with a chronic illness. Learn how to involve other children as part of the treatment team, how to help children understand their sibling’s bleeding disorder and the importance of spending valuable time with each member of the family. Hear how parents can maintain a healthy connection. Learn the strategies to create an environment where all family members can flourish.

Audio CDs: 1

Audio CD

$12.00

$12.00

Subtotal

$205.00