| | | NHF12-215 | | When a Band-Aid and a Hug Are Not Enough! Pain Management and Alternative Therapies Speakers: Angela Lambing, MSN, NP-C This session reviews hemophilia pain and how it may be perceived. We look at data from the National Pain Study and discuss non-pharmacological approaches to pain management with an emphasis on collaborating with your hemophilia treatment center for optimal pain management options. We learn to recognize the many different types of hemophilia pain and understand how different non-pharmacological strategies can assist in pain management. In addition, we identify how teens may differ in their expression of pain. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-004 | | Hemophilia 101 Speakers: Joanna A. Davis, MD This session focuses on the basics of hemophilia including inheritance, mechanism, symptoms and management. With a thorough overview of the condition, you will have a better understanding of joint bleeds, the rationale for prophylaxis and practical approaches to common issues. Hear from veteran parents, teens and young adults on living with hemophilia. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-222 | | Camp Nursing: Heigh-Ho, Heigh-Ho, It’s Off to Camp We Go Speakers: Jennifer Meldau, MSRN, CPNP; Madeline Cantini, BSN, RN, CCRC; Jim Munn, RN, MS; Moderator: Ellen White, RN, MSN This session focuses on the role of the HTC nurse in the camp setting. After a brief discussion of the history and types of camps offered for those with bleeding disorders, the speakers focus on the following: health center guidelines developed for camps serving those with bleeding disorders; ways to address campers' other co-morbidities besides their bleeding diatheses; and the benefits to both the HTC nurse and the camper in this type of setting. We also discuss the importance of self-infusion teaching and ways to accomplish this at camp, the importance of teaching within the camp setting, how other health-related topics that support the care of children with bleeding disorders can be incorporated at camp, and ways to make the learning experience fun. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-008 | | Preguntas Para Los Expertos En Español Speakers: Irmel A. Ayala, MD Únase a nosotros para esta sesión donde analizaremos la definición médica de hemofilia y la enfermedad de von Willebrand, el manejo de los trastornos y un repaso general de los medicamentos y otras terapias para el tratamiento y la prevención de episodios de sangrado. Habrá tiempo suficiente para preguntas y respuestas. | | MP3 | | $10.00 | | $10.00 | |
