NHF12-215

When a Band-Aid and a Hug Are Not Enough! Pain Management and Alternative Therapies

Speakers: Angela Lambing, MSN, NP-C

This session reviews hemophilia pain and how it may be perceived. We look at data from the National Pain Study and discuss non-pharmacological approaches to pain management with an emphasis on collaborating with your hemophilia treatment center for optimal pain management options. We learn to recognize the many different types of hemophilia pain and understand how different non-pharmacological strategies can assist in pain management. In addition, we identify how teens may differ in their expression of pain.

MP3

$10.00

$10.00

NHF12-121

Insurance and Advocacy

Speakers: Johanna Gray, MPA; Ellen Riker; Michelle Rice

NHF’s DC consultants provide an update on the political climate post election, its potential impact on health reform implementation and what it means to you as a consumer. Learn how to use the Personal Health Insurance Toolkit to assist you in evaluating your health plan options.

MP3

$20.00

$20.00

NPSG14-246

Entrepreneurship in Rural Places: Revitalizing Towns and Economies with Locally Based Strategies

Audio CDs: 2

Audio CD

$30.00

$30.00

NHF12-004

Hemophilia 101

Speakers: Joanna A. Davis, MD

This session focuses on the basics of hemophilia including inheritance, mechanism, symptoms and management. With a thorough overview of the condition, you will have a better understanding of joint bleeds, the rationale for prophylaxis and practical approaches to common issues. Hear from veteran parents, teens and young adults on living with hemophilia.

Audio CDs: 1

Audio CD

$12.00

$12.00

ABA15-202

Diplomas, Tests & Physical Abilities: The ADA’s Prohibition of the Discriminatory Use of Qualification Standards

Audio CD

$18.00

$18.00

NHF12-102

I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System

Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH

Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online.

MP3

$10.00

$10.00

Subtotal

$100.00