NHF12-003

Von Willebrand Disease

Speakers: Cynthia Gauger, MD

Learn about coping with the diagnosis of VWD, management of the disorder and specific challenges it presents during childhood. Includes a brief overview of medication and other therapies for treatment and prevention of bleeding episodes. Learn what to expect during the progression of VWD from infancy through adulthood, the benefits of a team approach to treating physical and psychological aspects, and the services that are available at a hemophilia treatment center (HTC).

MP3

$10.00

$10.00

CACTI-103

Healthy and Safe Physical Environments: Safe Routes to School

Speakers: Barb Alberson, Lisa Cirill, Justine Hearn

A brief overview of the Safe Routes to School (SRTS) movement and describes expectations of CACTI county leads and partners in the SRTS efforts. Learn about the SRTS Strategic Leads' planned tiered approach for technical assistance and training to better assist each county with its unique SRTS work.

MP3

$0.00

$0.00

ABA15-323

Ethically “Blawging” your Way to Success

MP3

$15.00

$15.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

MP3

$10.00

$10.00

CACTI-204

CACTI Initiative: Administrative Items

Speakers: Robert Berger, Deputy Director, CACTI, Public Health Institute; Evelyn Unseld, Grants and Contracts Specialist, Public Health Institute

This session provides an opportunity for CACTI contracted partners to meet with members of the contract and program management team from the Public Health Institute to discuss administrative issues related to their contracts. Topics include billing, reporting and communications.

MP3

$0.00

$0.00

NHF12-110

Head, Shoulders, Knees & Toes: Pros and Cons of Protective Devices

Speakers: Kristen Jaworski, RN, BSN, CCRC

In this session, we discuss safety equipment for daily activities for children with bleeding disorders and the ability of safety measures to ultimately prevent bleeding episodes. We focus on the pros and cons of protective equipment and how to make the best decisions for your family using MedicAlert® guidelines. How important is MedicAlert identification? What is the best safety plan for your child? Can bleeds be prevented? Listen and find out!

MP3

$10.00

$10.00

NPSG14-225

When Food Deserts Become Just Desserts

MP3

$10.00

$10.00

ABA15-123

Ethics of E-Discovery in Complex Litigation

MP3

$15.00

$15.00

OAKSUM-002

Corporate Luncheon Panel: Women Leaders in Philanthropy

Speakers: Katherine Taylor, OneCalifornia Bank/OneCalifornia Foundation; Nicole Taylor, President and CEO, East Bay Community Foundation; Pamela David, Walter & Elise Haas Fund; Victoria Jones, Clorox Company Foundation; Judy Patrick, Women's Foundation of California; Dr. Sandra Hernandez, San Francisco Foundation; Celebrity Chef, Nikki Shaw; Thuy Vu

Audio CDs: 1

Audio CD

$15.00

$15.00

ABA15-132

A Conversation with the NLRB General Counsel & Deputy General Counsel

MP3

$15.00

$15.00

NHF12-124

Please Tell Me Who You Are: Identifying Different Roles in the Hospital Setting

Speakers: Kristen Jaworski, RN, BSN, CCRC

In this session, we focus on the variety of healthcare providers families with a bleeding disorder will encounter and give effective methods on how to best communicate with them. We define “need to know” information and role play an exercise on how to effectively advocate for your care when dealing with different providers. Leave the session with a list of phrases that will aid in conversations with healthcare providers and a basic template of “need to know” information. Best of all, you will have increased confidence in working with your healthcare team.

MP3

$10.00

$10.00

Subtotal

$110.00