NHF12-104

Your Family, Our Future: Understanding the Role of Genetic Testing in Hemophilia

Speakers: Marion Koerper, MD; Diane Aschman MS; Barbara Konkle, MD; Moderators: Glenn Pierce, MD, PhD, Chief Medical Officer, Biogen Idec Hemophilia

This session introduceS an innovative partnership of the National Hemophilia Foundation (NHF), American Thrombosis and Hemostasis Network (ATHN), Puget Sound Blood Center (PSBC) and Biogen Idec Hemophilia, which offers free or low cost genetic testing and analysis to patients and members of families with hemophilia while advancing scientific research of genetics and hemophilia. The founding partners and other representatives of the community participate in an interactive panel discussion, provide an overview of genetic testing and its value, as well as present details about the new program and how it can benefit patients, carriers, and their families now and for generations to come.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-220

Wish Upon a STAR: Discussion of Ankle Replacement Surgery

Speakers: Paul S. Cooper, MD; Moderator: Carolyn Francis, RN, CNP, MS

Learn about the Scandinavian Total Ankle Replacement (STAR™) from the Medstar Georgetown University Hospital's leading foot and ankle surgeon, Paul S. Cooper, MD. Dr. Cooper discusses ankle anatomy; what makes the bleeding disorders patient an ideal candidate for the STAR; the advantage of ankle replacement over an ankle fusion; and preoperative, post-operative and rehabilitative care. He talks about how bleeding disorders patients are doing and will be expected to do in the future. Having performed more than 1,000 ankle replacements, Dr. Cooper shares his experience, challenges and hopes for the future of ankle replacement therapy.

MP3

$10.00

$10.00

NHF12-203

NHF Ethics Committee: What Can We Do For You?

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-001

Inspiration, Imagination & Motivation

Speakers: Cindy Ping, BSN; Regina Butler, RN; Moderator: Judy Kauffman, RN, CPNP

How well do patients follow our treatment advice? Learn about the state of adherence, and a method to help motivate patients to change behavior. Motivational interviewing helps the health care provider lead patients to discover their impetus for change. Learn the science behind the motivational interviewing movement.

MP3

$20.00

$20.00

NHF12-214

Art or Science: Musculoskeletal Management of Hemophilia for Physical Therapists

Speakers: Alice Anderson, PT, DPT, PCS; Moderator: Eileen San Juan, MS, PT

Art or Science: You are the PT. You know anatomy and kinesiology. You know the basic pathophysiology of hemophilia. But what recommendations will you provide for the person with a bleeding disorder who is sitting in front of you? RICE? Don’t participate in collision sports? This session focuses on what we know, what we think we know, and what we hope we know about an evidence-based approach to the musculoskeletal management of persons with bleeding disorders.

MP3

$10.00

$10.00

Subtotal

$64.00