NHF12-104

Your Family, Our Future: Understanding the Role of Genetic Testing in Hemophilia

Speakers: Marion Koerper, MD; Diane Aschman MS; Barbara Konkle, MD; Moderators: Glenn Pierce, MD, PhD, Chief Medical Officer, Biogen Idec Hemophilia

This session introduceS an innovative partnership of the National Hemophilia Foundation (NHF), American Thrombosis and Hemostasis Network (ATHN), Puget Sound Blood Center (PSBC) and Biogen Idec Hemophilia, which offers free or low cost genetic testing and analysis to patients and members of families with hemophilia while advancing scientific research of genetics and hemophilia. The founding partners and other representatives of the community participate in an interactive panel discussion, provide an overview of genetic testing and its value, as well as present details about the new program and how it can benefit patients, carriers, and their families now and for generations to come.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-220

Wish Upon a STAR: Discussion of Ankle Replacement Surgery

Speakers: Paul S. Cooper, MD; Moderator: Carolyn Francis, RN, CNP, MS

Learn about the Scandinavian Total Ankle Replacement (STAR™) from the Medstar Georgetown University Hospital's leading foot and ankle surgeon, Paul S. Cooper, MD. Dr. Cooper discusses ankle anatomy; what makes the bleeding disorders patient an ideal candidate for the STAR; the advantage of ankle replacement over an ankle fusion; and preoperative, post-operative and rehabilitative care. He talks about how bleeding disorders patients are doing and will be expected to do in the future. Having performed more than 1,000 ankle replacements, Dr. Cooper shares his experience, challenges and hopes for the future of ankle replacement therapy.

MP3

$10.00

$10.00

NHF12-203

NHF Ethics Committee: What Can We Do For You?

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-001

Inspiration, Imagination & Motivation

Speakers: Cindy Ping, BSN; Regina Butler, RN; Moderator: Judy Kauffman, RN, CPNP

How well do patients follow our treatment advice? Learn about the state of adherence, and a method to help motivate patients to change behavior. Motivational interviewing helps the health care provider lead patients to discover their impetus for change. Learn the science behind the motivational interviewing movement.

MP3

$20.00

$20.00

NHF12-214

Art or Science: Musculoskeletal Management of Hemophilia for Physical Therapists

Speakers: Alice Anderson, PT, DPT, PCS; Moderator: Eileen San Juan, MS, PT

Art or Science: You are the PT. You know anatomy and kinesiology. You know the basic pathophysiology of hemophilia. But what recommendations will you provide for the person with a bleeding disorder who is sitting in front of you? RICE? Don’t participate in collision sports? This session focuses on what we know, what we think we know, and what we hope we know about an evidence-based approach to the musculoskeletal management of persons with bleeding disorders.

MP3

$10.00

$10.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

MP3

$10.00

$10.00

NHF12-210

Been There, Done That! Raising Parents When you Have a Bleeding Disorder

Speakers: Michele Cecil; Brent Movitz; Jozef Zwier; Moderators: Jennifer Maahs, MSN, PNP; Tonya Hegwood, MSW, LCSW

A panel of young adults with bleeding disorders share childhood experiences of their parents’ adjustment to their diagnosis. We discuss the challenges a bleeding disorder can present, as well as the growth that can occur in both parents and children as a result. This conversation for all will reassure new families that life with a bleeding disorder need not be as frightening as the initial diagnosis.

Audio CDs: 1

Audio CD

$12.00

$12.00

CACTI-103

Healthy and Safe Physical Environments: Safe Routes to School

Speakers: Barb Alberson, Lisa Cirill, Justine Hearn

A brief overview of the Safe Routes to School (SRTS) movement and describes expectations of CACTI county leads and partners in the SRTS efforts. Learn about the SRTS Strategic Leads' planned tiered approach for technical assistance and training to better assist each county with its unique SRTS work.

MP3

$0.00

$0.00

NPSG14-127

A General Plan Meets Smart Growth: TOD, Millenials, and Boomers Oh My!

Audio CDs: 1

Audio CD

$15.00

$15.00

NPSG14-225

When Food Deserts Become Just Desserts

Audio CDs: 1

Audio CD

$15.00

$15.00

ABA15-213

Cybersecurity: It’s Not Just About BigLaw Anymore

Audio CD

$18.00

$18.00

Subtotal

$134.00