| | | NHF12-102 | | I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-125 | | I’m More than Just a Caregiver Speakers: Diane Standish, LSW; Robin Bratton Bias; Devi Tejiram; Dawn Rotellini As a caregiver, do you ever experience burnout or loss of identity? During this session we focus on caregiver identity, how relationships are affected by the caregiver and the importance of maintaining balance in multiple roles. We look at research findings about caregiver identity and hear anecdotal experiences from our panelists. You learn ways to monitor caregiver burnout, and get suggestions and tips on maintaining balance and nourishing healthy relationships. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
