| | | NHF12-215 | | When a Band-Aid and a Hug Are Not Enough! Pain Management and Alternative Therapies Speakers: Angela Lambing, MSN, NP-C This session reviews hemophilia pain and how it may be perceived. We look at data from the National Pain Study and discuss non-pharmacological approaches to pain management with an emphasis on collaborating with your hemophilia treatment center for optimal pain management options. We learn to recognize the many different types of hemophilia pain and understand how different non-pharmacological strategies can assist in pain management. In addition, we identify how teens may differ in their expression of pain. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-121 | | Insurance and Advocacy Speakers: Johanna Gray, MPA; Ellen Riker; Michelle Rice NHF’s DC consultants provide an update on the political climate post election, its potential impact on health reform implementation and what it means to you as a consumer. Learn how to use the Personal Health Insurance Toolkit to assist you in evaluating your health plan options. | | MP3 | | $20.00 | | $20.00 | |
| | | NPSG14-246 | | Entrepreneurship in Rural Places: Revitalizing Towns and Economies with Locally Based Strategies Audio CDs: 2 | | Audio CD | | $30.00 | | $30.00 | |
| | | NHF12-004 | | Hemophilia 101 Speakers: Joanna A. Davis, MD This session focuses on the basics of hemophilia including inheritance, mechanism, symptoms and management. With a thorough overview of the condition, you will have a better understanding of joint bleeds, the rationale for prophylaxis and practical approaches to common issues. Hear from veteran parents, teens and young adults on living with hemophilia. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | ABA15-202 | | Diplomas, Tests & Physical Abilities: The ADA’s Prohibition of the Discriminatory Use of Qualification Standards | | Audio CD | | $18.00 | | $18.00 | |
| | | NHF12-102 | | I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-125 | | I’m More than Just a Caregiver Speakers: Diane Standish, LSW; Robin Bratton Bias; Devi Tejiram; Dawn Rotellini As a caregiver, do you ever experience burnout or loss of identity? During this session we focus on caregiver identity, how relationships are affected by the caregiver and the importance of maintaining balance in multiple roles. We look at research findings about caregiver identity and hear anecdotal experiences from our panelists. You learn ways to monitor caregiver burnout, and get suggestions and tips on maintaining balance and nourishing healthy relationships. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-120 | | Effective Social Work Strategies for Engaging the African-American Male Speakers: Waldo E. Johnson Jr., PhD, MSW; Moderator: Debra Honig, MSW, LCSW This session focuses on the role and importance of historical and contemporary social statuses that shape medical and public health professional individual and institutional practices with African-American males. We explore how these racialized and social class experiences, coupled with American male cultural notions and experiences with public and private social welfare and social service institutions as both patients and clients, frame the context for examining African-American male marginalized engagement and their subsequent distrust/mistrust of the medical and public health professions. In addition, the presentation focuses on how male help-seeking behavior and culture within the disproportionately impoverished African-American community influence engagement with social welfare and social service institutions. | | MP3 | | $20.00 | | $20.00 | |
| | | NPSG14-302 | | Building Equity and Social Justice Networks to Scale: Ingredient and Recipe Basics Audio CDs: 2 | | Audio CD | | $30.00 | | $30.00 | |
| | | CACTI-204 | | CACTI Initiative: Administrative Items Speakers: Robert Berger, Deputy Director, CACTI, Public Health Institute; Evelyn Unseld, Grants and Contracts Specialist, Public Health Institute This session provides an opportunity for CACTI contracted partners to meet with members of the contract and program management team from the Public Health Institute to discuss administrative issues related to their contracts. Topics include billing, reporting and communications. | | MP3 | | $0.00 | | $0.00 | |
| | | NHF12-003 | | Von Willebrand Disease Speakers: Cynthia Gauger, MD Learn about coping with the diagnosis of VWD, management of the disorder and specific challenges it presents during childhood. Includes a brief overview of medication and other therapies for treatment and prevention of bleeding episodes. Learn what to expect during the progression of VWD from infancy through adulthood, the benefits of a team approach to treating physical and psychological aspects, and the services that are available at a hemophilia treatment center (HTC). | | MP3 | | $10.00 | | $10.00 | |
| | | NPSG14-249 | | Tools that Empower: Leveraging Emerging Technologies to Dramatically Increase Public Participation Audio CDs: 2 | | Audio CD | | $30.00 | | $30.00 | |
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| Subtotal | | $202.00 |
