NHF12-000

Full Set Audio

Each session on a separate CD (includes free binders); or all sessions in mp3 format on free USB (playable on any computer, iPod, IPad or other listening electronic device. CDs and USBs delivered via Priority US Mail. 15% shipping and handling fees will be applied upon checkout.

Audio CDs: 73

Audio CD

$495.00

$495.00

NHF12-220

Wish Upon a STAR: Discussion of Ankle Replacement Surgery

Speakers: Paul S. Cooper, MD; Moderator: Carolyn Francis, RN, CNP, MS

Learn about the Scandinavian Total Ankle Replacement (STAR™) from the Medstar Georgetown University Hospital's leading foot and ankle surgeon, Paul S. Cooper, MD. Dr. Cooper discusses ankle anatomy; what makes the bleeding disorders patient an ideal candidate for the STAR; the advantage of ankle replacement over an ankle fusion; and preoperative, post-operative and rehabilitative care. He talks about how bleeding disorders patients are doing and will be expected to do in the future. Having performed more than 1,000 ankle replacements, Dr. Cooper shares his experience, challenges and hopes for the future of ankle replacement therapy.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

Audio CDs: 1

Audio CD

$12.00

$12.00

ABA15-305

Policies & Practices Designed to Protect Confidential Information & Trade Secrets

MP3

$15.00

$15.00

NHF12-214

Art or Science: Musculoskeletal Management of Hemophilia for Physical Therapists

Speakers: Alice Anderson, PT, DPT, PCS; Moderator: Eileen San Juan, MS, PT

Art or Science: You are the PT. You know anatomy and kinesiology. You know the basic pathophysiology of hemophilia. But what recommendations will you provide for the person with a bleeding disorder who is sitting in front of you? RICE? Don’t participate in collision sports? This session focuses on what we know, what we think we know, and what we hope we know about an evidence-based approach to the musculoskeletal management of persons with bleeding disorders.

Audio CDs: 1

Audio CD

$12.00

$12.00

ABA15-107

Railroads vs. Airlines: One Statue But Two Different Approaches

Audio CD

$18.00

$18.00

NHF12-121

Insurance and Advocacy

Speakers: Johanna Gray, MPA; Ellen Riker; Michelle Rice

NHF’s DC consultants provide an update on the political climate post election, its potential impact on health reform implementation and what it means to you as a consumer. Learn how to use the Personal Health Insurance Toolkit to assist you in evaluating your health plan options.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-215

When a Band-Aid and a Hug Are Not Enough! Pain Management and Alternative Therapies

Speakers: Angela Lambing, MSN, NP-C

This session reviews hemophilia pain and how it may be perceived. We look at data from the National Pain Study and discuss non-pharmacological approaches to pain management with an emphasis on collaborating with your hemophilia treatment center for optimal pain management options. We learn to recognize the many different types of hemophilia pain and understand how different non-pharmacological strategies can assist in pain management. In addition, we identify how teens may differ in their expression of pain.

Audio CDs: 1

Audio CD

$12.00

$12.00

ABA15-136

Investigating the Executive: Common Perils & Pitfalls Faced When Investigating the Corporate Executive Suite – Pt.2

MP3

$15.00

$15.00

NHF12-102

I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System

Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH

Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-120

Effective Social Work Strategies for Engaging the African-American Male

Speakers: Waldo E. Johnson Jr., PhD, MSW; Moderator: Debra Honig, MSW, LCSW

This session focuses on the role and importance of historical and contemporary social statuses that shape medical and public health professional individual and institutional practices with African-American males. We explore how these racialized and social class experiences, coupled with American male cultural notions and experiences with public and private social welfare and social service institutions as both patients and clients, frame the context for examining African-American male marginalized engagement and their subsequent distrust/mistrust of the medical and public health professions. In addition, the presentation focuses on how male help-seeking behavior and culture within the disproportionately impoverished African-American community influence engagement with social welfare and social service institutions.

Audio CDs: 2

Audio CD

$24.00

$24.00

Subtotal

$651.00