| | | NHF12-103 | | Global Blood Safety, Optimizing Treatment and the Affordability of Care Speakers: Brian O’Mahony, Mark W. Skinner Over the next few years, we will see a revolution in treatment not seen since the 1960s. Treatment products will advance on all fronts, from viral-inactivated (solvent detergent) cryoprecipitate, biosimilars of current therapies and treatment products with substantially enhanced efficacy to the increasing likelihood that through gene transfer a “cure” may become a reality. The blood safety concerns of the past have been replaced by current concerns about maintaining vigilance against such blood-borne agents as viruses and prions. Equally important are the challenges of adequate factor supply and access to products around the world. This session describes how patients have started to join forces to bring all key stakeholders together to ensure that the views of product users are considered when it comes to access to these vital therapies. During this session we also address the challenges of answering US government and payer demands for evidence-based medicine, and cost justification for the introduction of new therapies and enhancement of current treatments. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-207 | | Consequences of Blood in the Joint: Science to Clinical Practice Speakers: Angela Forsyth, PT, DPT Prevention of joint bleeding to protect structures such as the synovial membrane, cartilage and bone from detrimental changes is optimal, but not entirely feasible at this time. Therefore, we frequently must rely on medical and adjunct treatment administered at the time of bleeding to minimize the negative effects of blood in the joint. Advances in treatment that healthcare providers are able to offer people with hemophilia begin with basic science. In this session we discuss multiple concepts taken from scientific research that may influence future clinical practice and our ability to affect inflammation, wound healing, synovitis, cartilage and bone, and minimizing the negative effects of blood in the joint. | | MP3 | | $10.00 | | $10.00 | |
