| | | ABA15-205 | | Obtaining Information in Arbitration | | MP3 | | $15.00 | | $15.00 | |
| | | ABA15-222 | | Class Discovery: Plaintiff & Defense Perspectives on Expanding and Limiting Discovery Regarding Unnamed Class Members | | Audio CD | | $18.00 | | $18.00 | |
| | | ABA15-127 | | The Outer Edges of Retaliation Claims | | Audio CD | | $18.00 | | $18.00 | |
| | | NHF12-201 | | Oral Presentations from the Top Research Poster Abstracts Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NPSG14-02 | | Equitable Development 1/2 day session. | | MP3 | | $35.00 | | $35.00 | |
| | | ABA15-312 | | Compensable time in the Digital Age | | Audio CD | | $18.00 | | $18.00 | |
| | | NPSG14-221 | | Livable Communities Council: Engaging Volunteers to Empower Communities Audio CDs: 1 | | Audio CD | | $15.00 | | $15.00 | |
| | | ABA15-138 | | Settlement Issues in Whistleblower Cases | | Audio CD | | $18.00 | | $18.00 | |
| | | NPSG14-108 | | Creating Competitive Communities: Partnering with Business for Sustainable Investment Audio CDs: 1 | | Audio CD | | $15.00 | | $15.00 | |
| | | NHF12-103 | | Global Blood Safety, Optimizing Treatment and the Affordability of Care Speakers: Brian O’Mahony, Mark W. Skinner Over the next few years, we will see a revolution in treatment not seen since the 1960s. Treatment products will advance on all fronts, from viral-inactivated (solvent detergent) cryoprecipitate, biosimilars of current therapies and treatment products with substantially enhanced efficacy to the increasing likelihood that through gene transfer a “cure” may become a reality. The blood safety concerns of the past have been replaced by current concerns about maintaining vigilance against such blood-borne agents as viruses and prions. Equally important are the challenges of adequate factor supply and access to products around the world. This session describes how patients have started to join forces to bring all key stakeholders together to ensure that the views of product users are considered when it comes to access to these vital therapies. During this session we also address the challenges of answering US government and payer demands for evidence-based medicine, and cost justification for the introduction of new therapies and enhancement of current treatments. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | ABA15-102 | | Employment Law Issues for Startups | | MP3 | | $15.00 | | $15.00 | |
| | | ABA15-126 | | Making it Count: Effective Pre-Trial Oral Advocacy | | Audio CD | | $18.00 | | $18.00 | |
| | | NHF12-104 | | Your Family, Our Future: Understanding the Role of Genetic Testing in Hemophilia Speakers: Marion Koerper, MD; Diane Aschman MS; Barbara Konkle, MD; Moderators: Glenn Pierce, MD, PhD, Chief Medical Officer, Biogen Idec Hemophilia This session introduceS an innovative partnership of the National Hemophilia Foundation (NHF), American Thrombosis and Hemostasis Network (ATHN), Puget Sound Blood Center (PSBC) and Biogen Idec Hemophilia, which offers free or low cost genetic testing and analysis to patients and members of families with hemophilia while advancing scientific research of genetics and hemophilia. The founding partners and other representatives of the community participate in an interactive panel discussion, provide an overview of genetic testing and its value, as well as present details about the new program and how it can benefit patients, carriers, and their families now and for generations to come. | | MP3 | | $10.00 | | $10.00 | |
| | | NPSG14-131 | | Building Leadership for Water-wise Growth in the West Audio CDs: 1 | | Audio CD | | $15.00 | | $15.00 | |
| | | NPSG14-207 | | Resilient Communities: Resources and Case Studies for Smart School Siting Audio CDs: 1 | | Audio CD | | $15.00 | | $15.00 | |
| | | NHF12-122 | | Beyond the Label: Carriers and Women with Mild Hemophilia Speakers: Joanna A. Davis, MD; Lynne Szott, RN, CCM; Moderator: Danielle Schwager For female carriers, dropping the term “symptomatic carrier” and picking up the label “mild hemophilia” can be more complicated than it seems. Listen to a panel discussion about the benefits and challenges of labels. Topics include implications of labels and diagnosis in terms of insurance, medical care and self-identity. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | ABA15-203 | | Displaying Professionalism When Clients Allege Wrongdoing and Malpractice | | Audio CD | | $18.00 | | $18.00 | |
| | | NPSG14-123 | | Where’s the Money: 2014 Smart Growth Funding Report | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-116 | | Novel Technologies and New Products in Hemostasis, Anticoagulation, HIV & Hepatitis C Audio CDs: 1 | | Audio CD | | $24.00 | | $24.00 | |
| | | NHF12-123 | | How Spiritual Diversity Affects Your Healthcare Decisions Speakers: Greg McClure, MA, MS, LSW; Debra Schear In this session, we focus on the role spirituality has in our healthcare decisions. We discuss the definition of spiritual diversity, the ways in which to work with healthcare providers while staying true to beliefs, and your rights to spiritual sensitivity in the healthcare setting. Learn that spiritual diversity can impact your healthcare decisions in a positive way. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-118 | | Sharing & Caring: Case Studies on VWD Speakers: Betsy Koval, RN, BSN; Laura-Jean Siggens, RN, MSN, CPN; Angela Lambing, RN, NP; Claudia Lupia, RN, BS, OCN; Kerry Hansen, RN; Charmaine Biega, RN; Moderator: Mary Lou Cygan, MSN, RN, CPNP During this session we focus on von Willebrand Disease care for a variety of patients seen at the HTC. We address approaches that have been successful in dealing with diverse patient populations and look at unique scenarios. | | MP3 | | $20.00 | | $20.00 | |
| | | NHF12-210 | | Been There, Done That! Raising Parents When you Have a Bleeding Disorder Speakers: Michele Cecil; Brent Movitz; Jozef Zwier; Moderators: Jennifer Maahs, MSN, PNP; Tonya Hegwood, MSW, LCSW A panel of young adults with bleeding disorders share childhood experiences of their parents’ adjustment to their diagnosis. We discuss the challenges a bleeding disorder can present, as well as the growth that can occur in both parents and children as a result. This conversation for all will reassure new families that life with a bleeding disorder need not be as frightening as the initial diagnosis. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-202 | | Steps for Living Speakers: Ayana Woods, MPH; Chad Feay: Christie VanHorne, M.Ed, MPH Learn about Steps for Living, NHF’s newest educational program! The Steps for Living website is a great resource for information on bleeding disorders for kids, adolescents, adults and health educators to promote healthy living for the whole family. It’s a practical tool kit to help families deal with the daily challenges of living with a bleeding disorder and make healthy decisions throughout all life stages. Steps for Living is composed of four sections: First Step, ages 0-8; Next Step, ages 9-15; Step Up, ages 16-25; and Step Out - a new section for adults 26 and up. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-112 | | Nurse Luncheon - Be Our Guest Speakers: Mary Lou Cygan, MSN, RN, CPNP; Val D. Bias; Jim Munn, RN, MS; Moderator: Susan Hunter, RN, BSN Listen as we reflect on our roles as HTC nurses and celebrate our achievements. Speakers include Val D. Bias, CEO of NHF, and Jim Munn, Vice Chair of WFH. Special recognitions and presentations will include, but are not limited to, the 2012 NHF Nurse of the Year and the recipient of the 2011-2012 NHF Nursing Excellence Fellowship | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-010 | | Ask the Expert: Inhibitors Speakers: Charles Nakar, MD Issues covered in this session include inhibitor management, immune tolerance induction therapy and eradication of inhibitors. We discuss the latest research findings on immune tolerance induction therapy, patients using rituximab for high-titer inhibitors, and hemophilia A and B patients with high and low titers. Sponsored by Novo Nordisk Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-211 | | The Glass is Half Full: Reframing Emotional Challenges for Women with Bleeding Disorders Speakers: Danielle Nance, MD; Barbara Forss; Moderator: Patrice Thomas, MS, MSW Many women with bleeding disorders have experienced the frustration of missed diagnosis, the physical and emotional pain of untreated bleeding conditions, and the embarrassment of disclosing personal information in order to explain why they are not feeling well. For some women, there is also guilt associated with passing a genetic condition on to their children. This session provides a time for women to reflect on their feelings about their lived experiences with bleeding disorders or those of their loved ones, and learn about various techniques for coping. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-127 | | Sugar and Spice and Not Everything Nice: Complementary and Alternative Medications Speakers: Miguel A. Escobar, MD; Moderator: Susan Hunter, RN, BSN During this session the audience learns about complementary and alternative medicine (CAM), including the most common CAM practices in the USA and their costs. Learn about the effects and mechanism of action of the most popular herbs and how they can affect individuals with bleeding disorders. The role of healthcare providers and CAM is also discussed. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-003 | | Von Willebrand Disease Speakers: Cynthia Gauger, MD Learn about coping with the diagnosis of VWD, management of the disorder and specific challenges it presents during childhood. Includes a brief overview of medication and other therapies for treatment and prevention of bleeding episodes. Learn what to expect during the progression of VWD from infancy through adulthood, the benefits of a team approach to treating physical and psychological aspects, and the services that are available at a hemophilia treatment center (HTC). Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-106 | | Dual Diagnosis: Working with Patients with Hemophilia and Mental Illness Speakers: Walter E. Kisthardt, PhD, MSW; Moderator: Michael J. Lammer, LISW Dr. Kisthardt draws upon his research with treatment providers in 42 states relating to effective interventions with participants who struggle with dual or multiple diagnoses. This workshop is informative and interactive. The four essential components of the approach – Engagement, Strengths Assessment, Personal Wellness/Recovery Planning and Group Supervision – are explored. Audio CDs: 1 | | Audio CD | | $24.00 | | $24.00 | |
| | | NHF12-012 | | NYLI: Who Are We? What Do We Do? Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NPSG14-229 | | Creative Placemaking in Rural America: Philanthropy and Government Supporting Rural Towns via Arts Investment Audio CDs: 1 | | Audio CD | | $15.00 | | $15.00 | |
| | | NHF12-110 | | Head, Shoulders, Knees & Toes: Pros and Cons of Protective Devices Speakers: Kristen Jaworski, RN, BSN, CCRC In this session, we discuss safety equipment for daily activities for children with bleeding disorders and the ability of safety measures to ultimately prevent bleeding episodes. We focus on the pros and cons of protective equipment and how to make the best decisions for your family using MedicAlert® guidelines. How important is MedicAlert identification? What is the best safety plan for your child? Can bleeds be prevented? Listen and find out! Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | ABA15-323 | | Ethically “Blawging” your Way to Success | | Audio CD | | $18.00 | | $18.00 | |
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| Subtotal | | $504.00 |
